Don Bailey

RTI uses cookies to offer you the best experience online. By clicking “accept” on this website, you opt in and you agree to the use of cookies. If you would like to know more about how RTI uses cookies and how to manage them please view our Privacy Policy here. You can “opt out” or change your mind by visiting: http://optout.aboutads.info/. Click “accept” to agree.

Search Publications

Filter by Year

Filter by Publication Type

Search Results

The Krabbe conundrum-How are benefits and harms weighed to determine the net benefit of screening?

State coordinator perceptions of linkages between newborn screening and early intervention

Newborn screening conditions: Early intervention and probability of developmental delay

Education and consent for population-based DNA screening: A mixed-methods evaluation of the Early Check Newborn Screening Pilot Study

Preparing newborn screening for the future: A collaborative stakeholder engagement exploring challenges and opportunities to modernizing the newborn screening system

Using a patient portal to increase enrollment in a newborn screening research study: Observational study

Expert evaluation of strategies to modernize newborn screening in the United States

Outreach to new mothers through direct mail and email: Recruitment in the Early Check research study

Emergence of developmental delay in infants and toddlers with an FMR1 mutation

Screening for Duchenne and related muscular dystrophies in North Carolina through the early check newborn screening pilot study

A voluntary statewide newborn screening pilot for spinal muscular atrophy: Results from early check

A behavior-theoretic evaluation of values clarification on parental beliefs and intentions toward genomic sequencing for newborns

Early intervention and newborn screening: Parallel roads or divergent highways?

Genomic sequencing for newborn screening: Results of the NC NEXUS Project

Developmental outcomes among young children with congenital Zika syndrome in Brazil

Decisional capacity for informed consent in males and females with fragile X syndrome

Values clarification and parental decision making about newborn genomic sequencing

Validation of fragile x screening in the newborn population using a fit-for-purpose FMR1 PCR assay system

Evaluation of x-linked adrenoleukodystrophy newborn screening in North Carolina

North Carolina newborn exome sequencing for universal screening (NC nexus) detects molecular etiologies underlying inborn errors of metabolism and hearing loss